Wednesday, November 26, 2014

Story of Joy

This being our 2nd pregnancy with Hyperemesis Gravidarum, we had an opportunity to 1.) Be depressed, give up, push God away & be bitter OR 2.) Find the good, be thankful, and press into Jesus & Trust Him even when we walk through "the valley".

Unfortunately, with my last pregnancy with our son Trust, I chose option #1 most of the time. I was SO afraid after losing our 1st baby a year and a half earlier, that the same thing would happen again, PLUS I had NO idea what was happening to my body. Light, sound, movement, smells anything and everything made me throw up. Even something touching my mouth made me vomit. I felt like I was being tortured. Minute by minute, second by second. I couldn't even sleep through the intense nausea. The only thing I could do was sing worship songs in my head because even the TV made me sick. It was the loneliest, darkest time of my life and I isolated myself. I gave up hope, I felt angry that God wouldn't take my suffering no matter how much I begged and pleaded. I became bitter at Him, I needed someone to blame for my pain, and He graciously took on my blame shifting and loved me through it. 

It took many months of counseling to realize God wasn't punishing me or wanting this to happen to me.. That my life & my son Trust's life was so valuable that the Enemy was hard pressed to try to steal, kill and destroy me and this precious babe. God showed me that despite these horrible things happening to me, He was DOING something, in me. Turning around the awful plans of the Enemy to harm me, and turning it around for His good. 

Hindsight is always 20/20. The verse I cling to now in ..James 1:2-3 "Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance." Was not even a thought in my mind, but holds SO true if you really press into the hard thing you are facing. You won't be the same on the other side of the hardship for good or for bad if you stare it straight in the face. 

Which leads me to this pregnancy and choosing option #2. 

Looking down at the pregnancy test and seeing PREGNANT in that small window, made my world stand still for a moment. Remembering the pain and suffering and how I weathered it less than gracefully before. After finding out I was pregnant, I laid in bed depressed for a week. Fears creeped in my mind and I let them stay for a few days. Then one day, I got up out of bed ready to FIGHT. I prayed and asked God to strengthen me and thanked Him for this second chance to do things differently, PLUS blessing us with another child we thought we'd never have. For SOME REASON, beyond myself, I was able to get up and see things from a whole new perspective. This was my second chance. 

Psalm 40:2-3 He lifted me out of the slimy pit,out of the mud and mire;he set my feet on a rock and gave me a firm place to stand. He put a new song in my mouth,a hymn of praise to our God.Many will see and fear the Lord and put their trust in him. 

I was out of the pit for a second, but knew the battle ahead would try to swallow me back up again. I had to rely on Gods strength and Trust Him through the battle, knowing He'd get us though it. 

The battle plan was simple. I knew I couldn't do this on my own strengths. I needed God to strengthen me daily & I couldn't isolate myself like I did before, I needed the prayers, support & help of others. 

After a vomiting fit I'd pray "God give me strength, help!" Then eat a bit, and throw up again. I was determined to fight and not give in. He has been my ROCK a solid place to stand on shaky ground.

We set up a support system of friends, family and our beloved church community to help with my son Trust, they would bring us meals, pray for us, help around the house etc... I reached out instead of trying to do everything on my own, and the difference between last pregnancy and this pregnancy is NIGHT and DAY. 

Don't get me wrong here, my Hyperemesis Gravidarum has been JUST as severe if not worse, landing me in the hospital 2 times + I still had to be on the Zofran pump and many more horrible things BUT the thing that has changed is ME. My mental state & my Trust in The Lord. I think that going through the last pregnancy really built that foundation for me to be where I am now. That my pain & suffering wasn't for no reason, it was just another piece to this Story God is weaving through our lives. And He is using the Stories of our kids!!

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2 days ago we got to see our sweet babe on the Ultrasound and found out we are having a GIRL!!! Like our son Trust, we decided to name her through what we feel like God is showing us or teaching us as a reminder for the rest of her life. We chose the name Story Joy. We really feel like this girl does and is going to have an amazing testimony & story to tell! She has also taught us to have Joy, not just surfacey happiness in even the toughest of circumstances and her life alone brings us such JOY! We feel so excited and loved seeing her during the ultrasound!


We have SO much to be Thankful for this Thanksgiving. Plus, I am pretty grateful I'll actually be able to eat and enjoy food!!! 😊

Thursday, November 13, 2014

A week of 1sts

I'm almost 18 weeks pregnant & the effects of Hyperemesis Gravidarum are starting to wear off a bit, although a bit of nausea will probably stay with me my entire pregnancy. 


I've been having some good days full of 1sts this pregnancy! 

I went to church for the 1st time two weeks ago. I wasn't able to sing during worship because I would start gagging (which is hard for me!!), but man, it was SO good for my heart! The week I happened to come to church was the same week that the Kids ministry, Middle School & High School Ministry's were leading worship!! My husband is the Middle School Youth Pastor at our church, so I have a special place in my heart for those kids! I found myself in tears feeling so thankful to be able to be back at church + the fact our kids were leading, it was just such a sweet moment! I got TONS of hugs and smiles and it just felt good to be out in the world again. Some youth saw me in the cafe and asked if they could pray for me, I loved their prayers!! 

I went to the grocery for the 1st time this past Sunday. Me and my son Trust went to our favorite grocery store, Trader Joes! I told Trust he had two rules: To find the Turtle (the one they hide in the store & if a kid finds it they get a sucker!) and To stay with me. He followed both rules great! He was a HUGE helper and I gave him tasks to find certain foods. He also found a Turkey and we weren't sure if he was on display or if he was replacing the turtle so we took it over to where you get the sucker. We asked the Trader Joes employee and he said "yes that is who you are supposed to find! The turtle is on vacation" it was soo cute. He felt very proud of himself!


When we were finally ready to cash out, we told the cashier Tim we found the Turkey! Tim asked Trust "Are you going to be a big Brother soon?" Looking at my blossoming tummy & my pump slung over my shoulder. Trust replied "YES!" And I continued to tell him that this was my very 1st trip to the grocery store since being pregnant for 4 1/2 months and that I have been very sick and in and out of the hospital. He said "oh wow! Congrats on being up and about!" & told me he understands and has 3 kiddos of his own. In the middle of ringing up our items he waved to an employee and whispered something to him. The employee came back with a bouquet of fall flowers WITH 2 pink & white Lilies in them (we named our 1st babe that we lost on Easter Lily & I have a pink & white Lily tattoo!) and he handed them to me and said "I'm glad you're up and about and I hope you continue to get better!" I nearly burst into tears and said "Thank you! This means so much to me right now!" I just feel like every step I take, Jesus is using people to show me His GREAT love and that He SEES me in this time. 
I picked Trust up from Preschool for the 1st time ever! I had never even been to his preschool before that day because he started right when things were going down hill for me. When I peeked my head in the room he said "mommy? Mommy!!!!! I didn't know you were picking me up today! Do you want to see my cubby?!" He felt happy and proud to show me his class. It was so nice!

I bought my 1st baby purchase! A fox lovey, a diaper changing pad & some curtains! 

Me and my Son Trust went out together for a "Date" for the 1st time yesterday. Before getting SO sick me and Trust went on TONS of adventures. We would go on dates and sit in Starbucks and just talk about Legos while he'd munch on Chips & sip apple juice. But a lot has changed and it has been VERY hard on him. He would ask me "Do you still love me? Will you be sick forever? Are you going to die?" I did my best to reassure him I would only be sick for a little while and that my love would never change for him. So yesterday was a very emotional 1st for us!! 

We went to Blue Star Barbershop and Got his hair cut (the 1st time in 6 months!) which he LOVES to do. He feels very grown up and cool when he gets his hair cut at the Barbershop + the lady Stacey who cuts his hair has kids and does so well asking him questions and keeping him happy. 

After the Barbershop Trust asked if we could go to the mall and play on the play place (it was freezing that day!) so I told him absolutely even though by that time I was starting to get epically nauseated. I told him we'd have to get a snack through Starbucks before we went and he was happy! 

My sister & nieces met us at the Playplace at the mall & Trust ran over to me with the biggest smile on his face he said "mommy this is the best day ever!!" What was a seemingly normal day for us in the past had turned into "The best day ever" because of the horrible circumstances that kept us from doing happy normal things together. I almost burst into tears I felt so happy he was happy. 

I am seeing life so differently these days. We really do take for granted! Being on deaths door can do one of two things to you: 1.) make you bitter or 2.) Make you better.  I honestly feel like I am better for everything I am going through and cherish life so much more!

OH I have one more first! I felt babe move in my tummy for the first time 5 or so days ago and constantly since! I was starting to worry since I was approaching 18 weeks and hadn't felt anything, but now I feel him/her moving lots! We also have our next ultrasound in a little over a week. I am dying to know what our baby's gender is and to put a name to this sweet one! 


I am definitely discovering that I can't do as much as I want to do, but that is ok! I am SO much farther than were I was just 2 weeks ago when I couldn't even move without being super sick. I am taking every day as it comes and realizing every moment is a gift. I am so thankful this thanksgiving season and I am looking forward to learning more and more through this process! 

Tuesday, October 28, 2014

A Happy Birthday

Yesterday was my 28th Birthday. It was a beautiful, Autumn day and such a gift. My husband got me my favorite flowers, Orchids & gift cards to Target (my fave store) & iTunes! 

 I wasn't expecting to feel well enough to do anything, but got a shower & put on makeup for the 1st time in over 3 months to go to my Doctors appointment. I even wore real pants! 😄

At my doctors appointment we heard our sweet babes heart beat, beating strong and steady. My son Trust said "it sounds like a storm!" My doctor told me she could probably start seeing me every other week now since I am finally gaining some weight instead of losing and a little more stable. She also talked about weaning me off my pump in a few weeks which I told her scared me, but also was exciting at the same time. She said that fear is totally understandable with all I e been through. She also shared that in 4 weeks we get to do the ultrasound to check to see if the baby is developing normally and to find out if it's a boy or girl. I smiled really big because I've been counting down the days until we get to find out. You see, instead of feeling joy about pregnancy I've felt more like I am terminally ill. I think actually seeing our baby and putting a name to him/her will really make things seem more real. Trust thinks it's a girl and I'm thinking it's probably a boy, who knows! It's so fun!

After our appointment I still felt pretty good, so Brett suggested we go to Northstar (my all time favorite resturant) and celebrate! I told trust I wanted to go there earlier that morning and when we got to Northstar Trust said "Mommy you got your wish!" We sat outside to enjoy the weather as Me and Brett shared a chopped salad & trust devoured his kid budah bowl. I felt so happy to be out in the world. I told Brett it's been so long being out and about my senses felt overloaded! Every noise and smell and people moving was a lot for my hermit body to process. We took our time eating and I sat still, making sure none of what I just ate would come back up. 

After we ate, Trust pointed over to Jeni's Icecream and said "mom! you got your wish, my wish is some Icecream!" I laughed and said "why not!" So Trust and Brett got some sorbet & ice cream as we sat outside again enjoying the beautiful weather. 

We decided to try to go to Innis Woods (my favorite park!) because they have wheelchairs at the front so Brett could wheel me around. My sweet husband wheeled me around the entire park and I breathed deep and took in the beautiful fall scenery. I told Brett "I feel happy, like genuine happiness!" It was good medicine for the soul. Brett also snapped a few pics since he knows I love fall family photos, but we couldn't do it this year.


Later we went to my sisters house and met up with her and my parents and we ate potato soup & grilled cheese + cake! It was so nice to be present for the festivities instead of locked away in a room in silence. 

I'm honestly not sure what happened yesterday. I'm pretty sure yesterday was my Birthday Present from God. It was such a happy birthday and I'm so glad to have the friends and family I have. I am feeling very grateful these days.

Sunday, October 26, 2014

Real Life- Eclipsed by Grace

These past 15 weeks have been some of the worst of my life. How can this be my real life? The nightmare I experienced with Hyperemesis Gravidarum robbed my first pregnancy & is at it again. 

I held back tears tonight knowing crying would make me throw up, mourning the fact I will never have a "normal pregnancy". Jesus met me in that realization and I thought of all of my sufferings. I said "God I can't candy coat this, this is what I'm going through" and laid it out.. 

Pregnancy glow? Try ghost white, drained face, with blood shot veins in my eyes, not to mention the acne taking over my body. I feel hideous.

My hair is in knots, matted from not shower for days. Risking a trip to the shower is not worth the breathlessness and boughts of uncontrollable vomiting that follow shortly after from doing too much. I should just shave my head. I feel more like a cancer patient going through rigorous chemo treatments. I would fit in better with them and probably be more understood.

I brushed my teeth for the first time in days. I used my sons toothpaste, it's milder than the extreme minty flavor of our adult toothpaste. I gently TRY to brush my tongue and start heaving into the sink.

The nausea never lets up. It won't leave me alone, not even with the cocktail of meds and the medicine pump I stick in my stomach every day. It won't let up even for a moment. IF I can fall asleep it helps for a while, but my nightly bathroom trip wrecks that. Even in my dreams I am nauseated and I'm dreaming more these days than Inception.

My stomach is bloated, crampy and hard as a rock. I know I look 6 months pregnant, but that is just my bowels pertruding out of my abdomen from the extreme constipation from the meds I am taking + pregnancy hormones. I am scared every bowel movement. The pain is so bad, I scream & cry to the point of almost passing out. 

I'm dehydrated but can't drink more than a few sips at a time. My mouth feels like I've been wandering a desert, but I haven't left my room. Food. I can't even write about food.. I hate it right now, though I know I need it. I stubbornly eat, knowing it may not stay down no matter my strong will.

I'm alone, isolated, I haven't left my house in months except for doctors appointments and trips to the hospital. I'm afraid to engage real life again. I've been through too much, it's seems impossible to reengage. 

I laid it out raw style. I knew He already knew, but I wanted to tell Him as his Daughter. A real moment. 

This is real life. Real life is ugly, raw, and hard. That is ok. You aren't weak or bad for experiencing "hard things" it's apart of life. It makes up our story. My seemingly microscopic faith gets tested daily. Sometimes I pass, sometimes I fail. It is hard to live in this tension between the Now (hard, painful stuff) and the Not Yet (when Gods kingdom breaks in & makes all things right & good). I feel the tension daily. But man do I see glimpses of the "Not Yet" that just utterly amaze me through it all. Especially when held up in front of the hard things I'm experiencing and I see an eclipse of Gods Grace, it's a beautiful sight. Only God could make my mess into a message of Hope & Grace. I'd be a lost cause without His redemption!

I've been keeping a list of all the ways people have helped us and huge ways God has provided for us (like our AC/heat getting repaired for free & my medicine pump being completely covered by insurance). The list is SO LONG like over 100 things. It's that grace eclipse held up in front of all of the suffering. What do I have to fear? Is my God not with me?! He IS ever present in times of need. My eyes get hazy sometimes and I forget. I'm so glad I have that written list. Because the road is long and we DO forget over and over the ways God has come through for us. I encourage you, Trust. When it's hard, when you want to quit, Trust The Lord is with you. Not in a Chistian way that becomes religious, but really in those REAL moments, when no one is watching, just you and Jesus. Have those hard convos. Be raw, be real. It's life changing stuff!









Monday, October 20, 2014

The Valleys and Hills of HG

The Valleys and Hills of Hyperemesis Gravidarum are treacherous. 

Last week I was in an incredible Valley. I was unable to move without throwing up, seeing a number on the scale that should be creeping up, but instead watching it plummet down. Constipation so bad I am crying because I feel like I'm passing boulders + the cramping makes me throw up.. Battle wounds, like mougles on my stomach from the many sites where my husband sticks me with a needle that is connected to the pump that continuously gives me medicine. My doctor told me if I continued on this path, I would be admitted to the hospital this week because I am already on the pump "The Big Guns" as he called it, and not doing well. He prescribed me ANOTHER medicine to try Diclegis to see if it would help and had me schedule an appointment with him the following week to see if I needed admitted to the hospital. 

My doctor gave me IV fluids in the office that day to get me through the day. The nurse had trouble finding my veins because of the dehydration and the only thing I ate that day was a small bag of potato chips. I tried not to cry as the bag of fluids got into my system.. 

The picture Above is only 2 days in with the pump. The sites are super painful and itchy. I am almost 2 weeks in now, so picture this only x4! 

We reevaluated our lives again and we decided I absolutely could NOT take care of Trust without full time support. Every time I got up to get Trust a drink or snack I ended up throwing up and got worse as the week wore on. I couldn't do another week like that without being in serious trouble.

My family were on vacation, sick or couldn't help, so we tapped into our amazing community of friends to help us out. Trust had so much fun and I was able to stay put and keep food down, FINALLY!

 I am now climbing the hill out of the valley. I had my weekly check in with my doctor to follow my progress and he looked at me and said you look much better! I told him I felt a lot better and took his advice to get help and stay still all week and it really helped. He told me to keep on this progress and to come back next week to make sure I don't sink back into another valley. He also suggested I take a motion sickness medication to see if it would help me get around better. 

The hardest thing about HG is the constant ups and downs. From one moment to the next it feels like things are getting better then the next I'm crying over my puke bucket, unable to breathe from violent boughts of vomiting. 

I'm struggling hard with the isolation of this condition as well. Although I want to see and talk to people, I literally can't talk on the phone or to people in person without feeling like I am going to throw up. Plus it's very embarrassing to throw up in front of people especially if it's a really intense moment where I throw up so violently I pee my pants. Yeah, I know ugly, right? 

It took me a LONG time after having Trust last time before I could reengage with people again. Plus, when you are going through something so hard and severe it is hard to relate to people or to not feel like a weird-o. 

I'm really being honest here! I know that it's not all for nothing. I see that even now.. This week alone I've heard from 5 momma's with HG & severe morning sickness that have told me "because of your honesty, It makes me realize I'm not alone!" To me, just knowing that I'm not the only one, that I'm not weird or whatever gives me so much hope to press forward. PLUS! There is an amazing gift at the end of all of this.. A Sweet, beautiful baby!!! Holding fast to Hope even amidst such suffering is all we can do in the meantime. 


Saturday, October 11, 2014

The Pump.

After an emergency doctor appointment at my doctors office + getting fluids in the office, they decided the next step to treat the Hyperemesis Gravidarum was the Zofran Medicine Pump & home care. 

My Homecare nurse came by the next day with the pump and gave me a very thorough run through of how it works. I had the Zofran Pump with my last pregnancy, but I was SO AFRAID of it that I hardly retained much when the nurse showed me how to use it. This time around it was no big deal and I remembered a lot of the info from before. Last time, I was also REALLY scared to poke myself with the needle anywhere but my legs, but this time I tried my stomach (I hear it isn't as painful as the legs). The nurse also gave me an extra shot of Zofran to get me at a good place so I felt better. I felt "good" for a while with the extra shot and I was even able to play the board game LIFE with my son. It was a bright spot in a lot of dark days. He was so happy I was playing with him!


I've been having troubles adjusting to having a tube attached to me, and when I got up, I pulled it right off! My son Trust has also been a little afraid to sit next to me. He is afraid the pump is going to poke him or that he was going to hurt me! I assured him that he wouldn't get hurt and we read the book 'Mamma has Hyperemesis Gravidarum (but only for a while)' and talked about everything. He is still not sure about it but I assured him the Pump was helping mama! 

Sleeping was also an adjustment. I felt nervous turning over with the tubes attached and the site was getting sore. The Pump went off at 7:30am telling us to change the syringe and when I sat up I started dry heaving. I had Brett get everything I needed to change it and a muffin.  :)

I am still struggling to drink and eat today.  Every time I get up I'm retching and so sick. I have hope that the pump will help, and at least I don't have to take medicine by mouth, but I'm nervous it won't work and I'll just keep being miserable. Time will tell! 




Thursday, October 9, 2014

13 weeks, emergency doc visit

Before pregnancy and during pregnancy picture 😳

The past week or so I've tried really hard to manage my HG (Hyperemesis Gravidarum) on my own and this morning after a vomiting fit, I decided I needed help. I called the nurse line at my doctors office and explained that it was like my meds just stopped working because I was vomiting and SUPER nauseated no matter what. She scheduled me an emergency Doctor appointment, and the doctor suggested a few things and I told him I had already tried everything. I knew what was next, The Zofran Pump. I had the Zofran pump with my last HG pregnancy with my son and although it helps, it HURTS, is super expensive, and home care nurses monitor you with it. You literally stick it into your leg or stomach (yourself or with help from a family member), it sucks and is awesome at the same time. I told him I was familiar with the Zofran pump and was willing to give it a shot. 

He also suggested I get hooked up to an IV for fluids in the office, so the nurse guided me back to the room. I was trying everything within me to not vomit, And when the bed wouldn't work in one room she moved me to another and I almost fainted on her. She was really nice and held me up and got me all situated and kept checking on me every few minutes. 

When my husband came back from lunch with my son Trust, the nurse unhooked me and took me out to my car. She told my husband if the Homecare nurses didn't call THAT DAY to call her, because she knew how badly I needed it.

We rushed from my appointment to my sons doctor appointment. I sat in the car with my red puke bowl, thinking of all the events of the day.. Poor Trust has had the worst Sinus infection and cough and he did one round of antibiotics but it never went away fully. We've had SO many sleepless nights taking care of him + me, we are ready for everyone to be healthy again!

I have a interesting week ahead. As we wait to see if the Zofran Medicine pump is covered by our insurance, I'm left with a little bit of hope and fear. Hope that it will work and that I won't be bedridden. Fear of the whole needle, swelling, unfunness of it. I'm realizing with every good effect something gives you, there is always a negative effect. Hoping I can push through all of this and not be overcome by everything. Trusting God even though I can't see what's in front of me.

UPDATE!! Home care is coming tomorrow and starting me on the Zofran Pump! Relief is in sight. These home care nurses are ANGELS. The woman I spoke with on the phone kept calling me honey and was really sweet. We already got the meds and everything tonight from a mail currier. ALSO, since our deductable is met,the home care is COMPLEYELY covered!! Praise The Lord!!!!!